Isaiah Austin in an interview about his Marfan syndrome diagnosis
(Photo credit: ESPN.com news services)
Three months ago we wrote about Isaiah Austin, an inspiring young man who overcame blindness in one eye to pursue his basketball career at Baylor University: The Basketball Eyes of Isaiah Austin: “Your Excuse or Your Story?”
Since then, Austin has continued his strong drive toward a basketball career in the NBA (National Basketball Association).
Now, however, he has received devastating news. As a precursor to being a likely NBA draft pick this year, he underwent medical testing to assess his health and fitness for professional sports.
The results?
Isaiah Austin has Marfan syndrome, a rare disease (about 1 in 5,000 people have it) that affects the body’s connective tissues. Have you heard stories of athletes dropping dead in the middle of a game? Most likely it was caused by a ruptured heart or aorta due to Marfan syndrome.
For Austin, it means that his dreams of a basketball career in the NBA are over. Playing competitive sports would mean playing with death. For the full story on ESPN, see: “Isaiah Austin has Marfan syndrome.”
When we wrote about Austin previously, he had faced—and made—a choice about whether to give up on his dream, or pursue it despite his disability.
Now Isaiah Austin faces another personal life or death choice.
The death of a dream
Austin’s dream of a basketball career is dead. Here is an ESPN interview with Isaiah Austin the day after he received the bad news:
It is difficult to watch. This young man worked so hard and overcame so much to get to where he is—only to have his hopes and dreams dashed mere days before he was set to achieve them. He was expected to be picked up by an NBA team late in the first round of draft picks—no small achievement.
When our dreams are dashed, what do we do?
How is it fair to work so hard and overcome so much, only to have it all snatched away at the last minute?
Where is God in all this?
For Isaiah Austin, it’s a bitter pill to swallow. Yet even in the midst of his grief over his lost dream, he had inspiring words. In the interview he said, “For all of my supporters, I just want to tell them sorry. I’m sorry they couldn’t see me play in the NBA. But it’s not the end; it’s only the beginning.”
One avenue for him was suggested by Baylor University basketball coach Scott Drew: “His health is the most important thing, and while it’s extremely sad that he won’t be able to play in the NBA, our hope is that he’ll return to Baylor to complete his degree and serve as a coach in our program.”
Austin has already shown the desire and the ability to be an inspiration to others. Through his hardships he has developed a depth of character that is rare in a twenty-year-old.
Because of his struggles so far, and the support he has received, Isaiah Austin has both the character and the faith to go on and do great things with his life, even if it will not involve greatness on the professional basketball court.
Still, it will not be easy. He now faces a new life or death choice:
- Do I give up on life, and let myself slide down into depression and despair?
- Or do I pick myself up, set new goals, and press forward on the new story of my life?
He will live with that choice every day for the rest of his life.
If nothing else, the fact that he was diagnosed with Marfan Syndrome before he went on to play professional basketball means that he will have a life, instead of potentially dropping dead on the court. If that had happened, it would have been hard to see the story of his life as anything but a tragedy.
Now, although he will not achieve success on the basketball court as he had dreamed, he still has the opportunity to achieve success in life.
How is this fair?
Still, life isn’t very fair, is it?
- A few people are born into wealth and privilege. Many are born into poverty and need.
- Some people have loving, caring parents. Others suffer under ridicule, shame, and abuse.
- A handful of people win big bucks in the lottery. Hundreds of millions of others win squat.
- Some people live long and healthy lives. Others struggle and die early from genetic disorders.
Unfortunately, by the usual measures of such things, life just isn’t fair.
Is it fair that Isaiah Austin suffered a detached retina and became blind in one eye?
As it turns out, the detached retina was likely due to his then undiagnosed Marfan syndrome. He struggled back to his feet, and began to make something of his life anyway. But now, his path toward basketball stardom is dead. He will have to watch from the sidelines as others who were not struck with a rare genetic disease go on to glory on the court.
It’s not fair.
But as good a value as fairness is, it is not the ultimate value or goal of life.
You see, we are here on earth to prepare ourselves for eternal life. (See “Heaven, Regeneration, and the Meaning of Life on Earth.”) And that means building a character that includes spiritual values such as patience, compassion for others, wisdom, and emotional maturity.
The end of Isaiah Austin’s story has not yet been written. We don’t know what further struggles he will face, or what he will go on to do. But as he himself tells us, “it’s not the end; it’s only the beginning.”
Our entire life here on earth is only the beginning!
For Austin, it is the beginning of a different life than he otherwise would have had. It is a life in which he can strive for new dreams, and make new goals. It’s not fair that he was born with Marfan syndrome. But knowing that he has it will prevent him from following a dream whose most likely result would have been his own premature death.
And now, a whole world of other choices stretches out in front of him.
There has already been one good result of this latest chapter in Isaiah Austin’s story. It has shone a national spotlight on Marfan syndrome. Perhaps his widely publicized heartbreak will help to prevent further sad stories of promising young athletes dropping dead on the court or field.
For more on Marfan syndrome, visit the webpage of The Marfan Foundation.
Update: If you would like to purchase an Isaiah Austin “Dream Again” Limited Edition Tee Shirt to benefit the Marfan Foundation, visit The Official Website of Isaiah Austin.
Where is God in this?
And yet, the question still lingers: How can God let these things happen to innocent people? How can God allow so much heartbreak and injustice in the world?
For one answer to these questions, see the article, “If God is Love, Why all the Pain and Suffering?”
Meanwhile, here are a few thoughts to ponder:
What is the purpose of our life here on earth? Is it to experience pleasure and glory for ourselves? Or is it to achieve greater goals? Very often, it is precisely the pain and suffering we experience that causes us to look deeper, strive harder, and make more of our life.
People who have experienced pain and suffering, and risen above it in their hearts and minds, are able to help others who are struggling with pain and suffering in a way that those who have lived happy, carefree lives simply cannot. And the relationships we build in the process of helping one another through our struggles go far deeper, and are much more inspiring, than relationships based on money, privilege, and material success.
We do not know what Isaiah Austin will go on to do with his life. But whatever he does, it will be with a more open and compassionate heart than if he had not had to suffer from the symptoms of a rare disease.
Yes, this will happen only if he makes the difficult choice for life in new goals and dreams over death in depression and despair about his lost dreams. However, his life and his struggles so far have prepared him for that choice. And the publicity generated by his story means that he will have many people rooting for him.
Lisa Green: “Your excuse or your story?”
Each one of us faces a choice of our own. As Isaiah Austin’s mother, Lisa Green, said to him when he faced his earlier choice about whether to continue on with one sightless eye, when something knocks us down, we can either make it our excuse or make it our story. This is the spiritual choice that God puts in front of every one of us: the choice between life and success or death and disaster (see Deuteronomy 30:11-20).
After all, as Martin Luther King put it so eloquently in his famous “I Have a Dream” speech, what matters most in life is the content of our character.
Our story here on earth is the story of the development of our character as human beings. That is the character and the story that we will carry with us into our eternal future.
We wish the best for Isaiah Austin. It will take time for him to grieve the loss of his dream. But we have every confidence that he will attain achievements and success on an even higher level than he originally sought.
What challenges, pain, and suffering have you had to overcome? How have they made your life different? What new depths of character have you developed as you have faced your own challenges and struggles? When have you chosen life over death?
Update: If you would like to purchase an Isaiah Austin “Dream Again” Limited Edition Tee Shirt to benefit the Marfan Foundation, visit The Official Website of Isaiah Austin.
Video Update: The NBA honors Isaiah Austin at the 2014 NBA draft:
For further reading:
- The Basketball Eyes of Isaiah Austin: “Your Excuse or Your Story?”
- Rx for a Rare Disease: Create a Mob
- If God is Love, Why all the Pain and Suffering?
- Heaven, Regeneration, and the Meaning of Life on Earth
- Divine Providence, by Emanuel Swedenborg
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Lee Woofenden is an ordained minister, writer, editor, translator, and teacher. He enjoys taking spiritual insights from the Bible and the writings of Emanuel Swedenborg and putting them into plain English as guides for everyday life.
Spiritual Insights for Everyday Life 
I understand his grief. One of my sons’ was diagnosed with Marfan Syndrome. We made many yearly trips to Johns Hopkins Hospital. We lost our son at the age of 19. What a wonderful son he was and a wonderful friend to everyone. I shall pray for Isaiah knowing he has a strong love for our Father and He will watch over this courageous young man.
Hi Margaret,
So sorry to hear about your son. Now he is in a place where he doesn’t have to spend time in hospitals or struggle with his health–a place where, as Jesus said, “their angels always behold the face of my Father.” Still, it leaves a hole in our hearts.
Speaking of disability, it seems kind of excessively unfair that God allows quite a number of people (usually males) to be born to have autism spectrum disorder (ASD), which can be comorbid with other snydromes and disorders, and then born in the human world where all those disorders and syndromes can be very maladaptive.
For example, humans typically value conformity and obedience. People with autism can have comorbid oppositional defiant disorder (ODD) which goes against that, resulting in no small amount of friction or strife between the autistic and others.
Another example: work in the human world often or usually involves doing repetitive tasks for a shift or quota, day in and day out, under the direction of management. An autistic person could lack the energy to do something he does not like, have comorbid ADD or ADHD that makes it hard to focus, and there is the previously mentioned ODD.
And of course as a third example, humans are social creatures, and autism messes with social life, causing endless friction and so-called cringe with others.
One has to wonder, why would any good God make someone with a brain with such anti-human tendencies, and then make them be born in the human world? People with autism may, as I said earlier, feel like aliens on the wrong planet.
Hopefully if there is an afterlife, and that afterlife is the New Church afterlife, people with autism really are cured of being autistic and any and all comorbid snydromes and disorders, and do not feel like they are constantly at odds with humans in the very human realm that is the New Church afterlife.
PS:
Where I said “do not feel like there constantly at odds with humans”, it should have read “do not feel like they are constantly at odds with humans” there.
And I forgot to mention: ASD may stunt empathy, which of course is needed to overcome excess love of self. Why would God allow someone to have a disability that messes up empathy?
Hi K,
Anyone who does not have the mental equipment to regenerate will grow up in heaven and become an angel. But also, empathy is a big thing, but it’s not the only thing. A guy who’s a crabby, grouchy mess who’s always snapping at people but who still gets up in the morning and does his job because it’s the right thing to do and he wants to contribute to society will be going to heaven, not to hell.
Hi K,
To take the last first, yes, all of these earthly syndromes and disorders will be a thing of the past in heaven. People whose physical and/or emotional and/or intellectual development was hampered or frozen by these syndromes will be freed of them after they die, and will continue their development until they are fully functional healthy adults, both physically and mentally.
It’s overstating the case to say that God made someone with a brain that has such anti-human tendencies. Yes, ultimately everything comes from God. But it gets filtered and even twisted through spiritual and physical realms that are often resistant to or antithetical to God’s nature.
If sunlight shines onto a dead body, instead of enlivening it, as it does with a live body, it causes maggots to multiply even faster. It’s the same sunlight, but the receiving object turns it into something completely different based on its own nature. Does the sun cause the body to decompose? Sort of. Even the power to decompose comes from the sun. But really, it’s the dead nature of the body itself that does this. There’s nothing intrinsic to the sun’s light and warmth that causes death and decay. That happens when the sunlight hits something that is affected by death and decay.
Just so, the power that makes severely autistic person comes from God, but the autism itself does not. That is a malfunction in the receiving body, which takes God’s power and turns it into something maladaptive.
On this earth, it’s unfair. Fairness is not an attribute of nature. But spiritually, even people who have such severe comorbid syndromes that they can function barely if at all in this world will be freed from all that, and will grow up in heaven, especially if they never were able to reach full adult functioning.
Those who did have at least minimal adult rationality and self-responsibility will go to heaven or hell not based on how their syndromes affected them, but based on what choices they made within the sphere of adult rationality and self-responsibility that they did have. Only choices made in freedom, which means in a balance between good and evil, count. “Forced choices” do not become a part of us.
Bottom line: No one goes to hell due to physical or mental illnesses in this world. Yes, physical and mental illnesses suck. This life is not fair. But fairness is an attribute of the spiritual world. No one is denied a happy life in heaven due to physical and mental illnesses that they did not bring upon themselves and they had no choice about.
Perhaps This is a small consolation for those struggling with these things here on earth. But compared to eternity, our lifetime on earth is an infinitesimally short time. What comes to an end is not real compared to what never comes to an end. Our life here on earth comes to an end. Our life in heaven lasts forever.
Thanks for the reply.
If an autistic goes to Heaven, would being autistic cheat the autistic out of going to the level of Heaven he would otherwise go to had he not been autistic?
Also, another possible symptom of autism is being unable to read emotions (unless they are really obvious), and thinking of the human face as rather demonic-looking (which is at least part of the reason why an autistic may struggle with eye contact). I take it such issues cease to be issues in any New Church afterlife?
PS: By human face there, I meant realistic or real life. Plenty of people on the autism spectrum have no problem looking at cartoon characters and reading their emotions (since cartoon emotions are like the facial expression equivalent of large print text).
Hi K,
Yes, all these issues cease in the afterlife. All of our earthly injuries, handicaps, and illnesses are removed in the afterlife. They are a function of the physical body, not of the spirit.
As far as what level of heaven an autistic person will be in, s/he might even be in a higher heaven than otherwise, especially if the autism is severe and s/he never progressed beyond young childhood mentally and emotionally. Infants who die live in the highest heaven because of their innocence, whereas older children who die live in lower heavens because they have lost some of their innocence.
However, it’s not an issue anyway. Even the lowest heaven is so much greater than anything anyone here on earth can possibly experience that no one is worried about what level of heaven they’re in. They’re all as happy as they can possibly imagine being.
It’s not an ironclad rule that older children _always_ go to a lower heaven though, I take it?
Hi K,
Good question. I suspect it’s more of a tendency than a rule. There are some older children who are still very innocent due to the environment in which they’re raised, or due to their own inborn character, or both.